Long time no speak, well in blog terms.
How has the end of summer holidays, start of the school year transition gone in your home? for my Aussie readers anyway, otherwise, just … hows it going?
Life has been a little stressful in the Stuff With Thing house. Annie has dived back into the school routine with joy, she is putting her hand up for everything and loving being back with her friends and teachers. I’m so grateful, because for a while there things were worrying.
Heidi… has not transitioned so well. We’ve had a gradual regression over the summer holidays that I thought she would bounce back from once school and routine started.
Not so much. The regression accelerated.
She mostly holds it together at school, just, falling apart as soon as she is safely with me.
Even with all the visual aids, schedules, prompts and time outs I can provide at home she is struggling. The effort of holding it together at school takes everything out of her.
Things we worked on for years, progress we had made has all been forgotten, back to square 1 we go.
Its week 3 and the early pick ups have started already, the exhaustion induced tear storms. The sleep walking, the just not sleeping, the early waking.
In the meantime there is more money leaking out, therapists, bills and I was hoping to find a job. But how do you work around all the appointments, the early pick ups, the sheer lack of sleep.
I spent the weekend in bed, sick, vomiting, dizzy. All week I’d been fighting off the facial numbness that precedes my atypical migraines. Hoping if I could just get some sleep things would be better. Instead I crashed in a heap.
Honestly I don’t know where to go from here. We have to pay the bills somehow, so I have to find a job. My daughter is falling to pieces before our eyes, isn’t her health and well being my priority… but then so is feeding her, keeping a roof over her head.
Round and round in circles my brain goes as I try to work out what to do.
{ 11 comments… read them below or add one }
Oh, hugs! I hope you can get a break soon. Like, a whole night’s uninterrupted sleep, without anyone feeling ill/upset/bouncing off walls. And I hope a financial solution presents itself. Soon.
Kate @ UpsideBackwards recently posted..School’s back
Sleep makes everything seem easier. Fingers crossed we can get a few nights sleep soon.
I’ve read that post on autismourwords before…it just makes my heart sink that we don’t have an NDS yet that works or *something* else that can ease the load. I think it would just be tremendously difficult to add a job into the mix with everything you are trying to balance in daily life.
Thanks Fiona, I hope one day (soon) the NDS is a reality.
I have no words apart from I hope things look up soon. Would it be possible for Heidi to have a rest day on Wednesdays for a few weeks to see if that helps? Good luck.
E. recently posted..Trying to sell myself
Thanks
We are looking at rest options, early pick ups or extra time off on days we have psych / OT / Paed appointments.
due to a few ‘mishaps and miscalculations’ we are totally broke all the time and I am getting more and more frantic in my search of a job… but it also means that whatever fragile balance we have now established with Nemo at school might be tremendously shaken when he will have to go to after school care every day again. I hear you. it’s scary.
nikki recently posted..understanding asd and adhd : HYPERFOCUS vs perseveration
It is so scary. Big hugs Nikki, I hope you find a solution soon.
I love you my friend.
x
Xx thank you so much.
I hear you loud and clear, we also have had a huge recession in our six year old who started in a support class this year. Six day’s was all it took to see three years of work gone out the window, we are not sure what happened, we took him out of the school and have spent the past fortnight calming him down. Our only option is for him to attend a special education school. we are waiting to hear if they have a spot. Our twelve year old aspie started high school and receiving some unwelcome attention from a group of girls. We are in talks with the school. It has to get better soon!!