Stuff With Thing to ‘I Wish I Didn’t Have Aspergers: #AutismPositivity2012

by Marita on April 30, 2012

Post image for Stuff With Thing to ‘I Wish I Didn’t Have Aspergers: #AutismPositivity2012

You may remember Annie’s post about how nervited she was about the concert at Federation Square.

I want to say thank  you to all the supportive and helpful comments on that post, it really helped Annie make it through the lead up the day itself without falling apart.


(making music with the salt, pepper and sugar)

On the morning of the concert we went into the city early and enjoyed a hot chocolate together before meeting up with her school mates for rehearsals just after 11am.  We were able to explore the theatre while it was still mostly empty and help Annie adjust to the space.

The children went into the theatre for rehearsals at 11.30am and parents were not allowed in till 1pm when the performance was to start. Annie went with her school mates happily enough and I enjoyed a cup of coffee and chat with the other parents.

1pm came around quickly and in to the theatre we went, it was standing room only with all the seats filled and people squeezing into any spot they could find.  Annie was standing up near the back and came running over to me asking for some lunch and a drink as she was hungry.  I had packed snacks in case thank goodness.

There was a bit of talking, a group sing-a-long to warm up the audience and then it was time for Annie’s school to perform 3 marimba songs, which they did very well, if I do say so.

After their performance there was more things happening down on the stage whilst Annie’s group lined up to go down on stage. I gave her a hug and watched her on the way down to the stage for the massed choir performance.

So far so good I thought and headed outside for a little break from the music and to purchase a drink, not having eaten lunch yet I needed something to keep me going.

I headed back in to see Annie sitting with her group, hands over her ears, rocking backwards and forwards, tears streaming down her face.

And my heart broke.

I felt such guilt for taking a break when she had been in there with the noise for hours.

I waved to her, figured out how to get past all the people and made my way down the stairs to stand at the edge of the stage opposite where she was sitting. I was in the way of the tech people but at that point I didn’t care.

Using basic hand signals I indicated she could come over to me, she shook her head. My brave brave girl was going to see it through, even though it was so very hard.

Her friends gave her hugs, I made my way back to the top of the theatre and positioned myself so she could see me.  The massed choir stood to sing once more and Annie stood with them, she rocked and covered her ears but stopped crying as she sang. After the song finished Annie slid down to sit next to her teacher who hugged her and said it was okay.

My Annie, my hero, you couldn’t see her cape, but it was firmly pinned on her shoulders. My super girl, with her super hearing and her super sensitive soul and her super determination, she made it all the way to the end, she did it.

The show finished around 2.30pm, such a long time, we went outside in the quiet, we watched the Yarra river flow by and slowly my girl unfurled, she had been seated next to speakers, the drummers cymbals reverberated in her throat and she could hear the noise under her skin. But she stayed, she was so proud to have done it, not sure if she will go again, but Annie can say she sang on stage at the Edge Theatre in Federation Square.

My aspie superhero her cape is invisible but it is there.

 

This Autism Positivity Flash Blog Event is the brainchild of Thinking About Perspectives, a group of bloggers committed to increasing autism awareness and acceptance via open and respectful dialogue.  They are:  30 Days of AutismOutrunning the StormThe Third GlanceAspie Kid,Flappiness IsQuirky and LaughingLife on the SpectrumFairy Tale ForgottenThe Aspie Side of Life, and Inner Aspie.

{ 13 comments }

S April 30, 2012 at 7:08 am

sniffffffffffffffffffffffffffffffff
I knew her before you know, yeah, I gave her her first piano…

Lydia La La April 30, 2012 at 7:38 am

I so admire you, Marita and your husband and Your Amazing daughters, Heidi and Annie. Each day has another hurdle you
(pl ) to jump. The organisation of a day to the city is not easy peasy either.

The amount of noise that Annie forced herself to endure to get through her day must have been so damn awful for her. I am noise sensitive and I get cranky over unnecessary loud noise. Yet, I don’t mind my music loud. Has to be MY Music…. that I love! A brave, brave girl. To get to sing in Fed. Sq. is pretty good too.

I wished we had that lovely undie shop up here in tropical Qld. I’d be there like a flash. Enjoy your next shopping excursion and don’t break the bank….. love. xo

Neo Aspieside April 30, 2012 at 7:53 am

Marita,
That is such a wonderful, beautiful story. Wow I can almost hear those loud cymbals myself! Annie is truly a superhero for staying through the concert. You are right it doesn’t matter whether or not she stays next time, she knows she can. And such a proud moment for both of you. That is so wonderful :-)

And thank you so much for participating in the flash blog. Can we link to your post and/or reprint on the autism positivity blog? We would give you full credit obviously. Your participation means so much to so many :)

Kirstie April 30, 2012 at 11:53 am

It sounds like she has some wonderful and supporting friends at school. Good work Annie for making it through the performance, I may not have heard it, but I’m sure it was magnificent!

kelley @ magnetoboldtoo.com April 30, 2012 at 12:34 pm

Awesome Annie.

That is what she needs on her cape.

(you know what is funny? People have been sharing my post on facebook and the image that comes up is not the image from my post but yours in my sidebar. Coincidence? Fate? Nevertheless I hope it brings more people to read about the awesomeness of your girls. And their mother. x)

Leah Kelley April 30, 2012 at 12:38 pm

This is a lovely post Marita! I love how you described the cape that your little superhero proudly wears. It may be invisible to some… but I have seen my son, H, wear it too… when we know that those accomplishments that may seem small to some – are really something HUGE!

What a proud moment for you and for your girl!

Hugs,
Leah

Maid In Australia April 30, 2012 at 12:51 pm

Oh I love her courage, it had me in tears. Can you please tell her how brave she was? Because I’m a mother of a son like her, and I know how tough that must have been – and also how rewarding it must have been for her to see it through. I be it felt good afterwards. I hope it did anyway. They all wear invisible capes, don’t they? x

Renee | About a Bugg April 30, 2012 at 12:55 pm

What an amazing girl you have Marita, so strong, so brave. She is an inspiration, as are you. xx

Joni April 30, 2012 at 1:19 pm

You’ve raised and managed her very well Marita! You and your husband should be proud of yourselves.

D.J. Kirkby April 30, 2012 at 3:15 pm

Beautiful post…just beautiful!

Suz April 30, 2012 at 6:53 pm

Love. Just love. xo

Nathalie Brown April 30, 2012 at 8:07 pm

Annie is a super power all on her own, she is absolutely amazing, delightful and genuine just like her mother x

Lisa May 31, 2012 at 1:08 pm

Aw Marita, I totally teared up reading that. I understood everything you wrote deep in my heart. I know we talked about this on IG when it happened but I am so glad I found this post. Beautiful!
Thank you and your girl is a superhero all the way!

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